Stigma and epilepsy in onchocerciasisendemic regions in Africa:a review and recommendations from the onchocerciasisassociated epilepsy working group

查看全文 作　　者：Sarah O'[1]Neill;Julia [2]Irani;Joseph Nelson Siewe [3]Fodjo;Denis [4]Nono;Catherine [5]Abbo;Yasuaki [6]Sato;Augustine [7]Mugarura;Housseini [3]Dolo;Maya [2]Ronse;Alfred [8]K.Njamnshi;Robert [3]Colebunders

机构地区：[1]CRISS-School of Public Health,Universite Libre de Bruxelles and LAMC Faculte de Philosophie et de Sciences Sociales Universite Libre de Bruxelles,Brussels,Belgium;[2]Department of Public health,Institute o f Tropical Medicine,Antwerp,Belgium;[3]Global Health Institute,University of Antwerp,Antwerp,Belgium;[4]Department of Mental Health,Austrian Partnership Programme in Higher Education and Research for Developm ent(APPEAR)Project&AVSI Foundation,Gulu University,Gulu,Uganda;[5]Department of Psychiatry,Makerere University,Kampala,Uganda;[6]Department of Environmental Science and Technology,Osaka Sangyo University,Osaka,Japan;[7]Epilepsy Support Association of Uganda,Wakiso,Uganda;[8]Department of Neurology,Yaounde Central Hospital/FMBS,The University of Yaounde I,Brain Research Africa Initiative(BRAIN),Yaounde,Cameroon

出　　处：《Infectious Diseases of Poverty》索引2019年第8卷第3期,共11页

基　　金：RC received funding from the European Research Council(grant No.ERCPoC 768815);VUR UOS and Jansen pharm aceuticals for organising the workshop,SO received funding at the Unit of Medical Anthropology,Department of Public Health,Institute of Tropical Medicine Antwerp from the Flemish Ministry of Sciences and Innovation in Belgium(grant No.SOFI 2014-2017). 摘　　要：Background:In onchocerciasis-endemic areas,particularly in those with a sub-optimal onchocerciasis control programme,a high prevalence of epilepsy is observed.Both onchocerciasis and epilepsy are stigmatizing conditions.The first international workshop on onchocerciasis-associated epilepsy(OAE)was held in Antwerp,Belgium(12-14 October 2017)and during this meeting,an OAE alliance was established.In this paper,we review what is known about epilepsy-associated stigma in onchocerciasis-endemic regions,and present the recommendations of the OAE alliance working group on stigma.Main body:For this scoping review,literature searches were performed on the electronic databases PubMed,Scopus and Science Direct using the search terms'epilepsy AND onchocerciasis AND stigma'.Hand searches were also undertaken using Google Scholar,and in total seven papers were identified that addressed epilepsy-related stigma in an onchocercisasis-endemic area.Due to the limited number of published research papers on epilepsyassociated stigma in onchocerciasis-endemic areas,other relevant literature that describes important aspects related to stigma is discussed.The thematic presentation of this scoping review follows key insights on the barriers to alleviating the social consequences of stigma in highly affected onchocerciasis-endemic areas,which were established by experts during the working group on stigma and discrimination at the first international workshop on OAE.These themes are:knowledge gaps,perceived disease aetiology,access to education,marriage restrictions,psycho-social well-being,burden on the care-giver and treatment seeking behaviour.Based on the literature and expert discussions during the OAE working group on stigma,this paper describes important issues regarding epilepsy-related stigma in onchocerciasis-endemic regions and recommends interventions that are needed to reduce stigma and discrimination for the improvement of the psycho-social well-being of persons with epilepsy.Conclusions:Educating healthcare workers and communities about OAE,strengthening onchocerciasis elimination programs,decreasing the anti-epileptic treatment gap,improving the care of epilepsy-related injuries,and prioritising epilepsy research is the way forward to decreasing the stigma associated with epilepsy in onchocerciasis-endemic regions. 关键词：EPILEPSY ONCHOCERCIASIS Stigma,Anti-epileptic treatment Nodding syndrome Discrimination Misconception,Africa

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Stigma and epilepsy in onchocerciasisendemic regions in Africa:a review and recommendations from the onchocerciasisassociated epilepsy working group

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