Outcomes and patients' perspectives of transition from paediatric to adult care in inflammatory bowel disease

查看全文 作　　者：Alice L [1,2,3]Bennett;David [4]Moore;Peter A [2,5]Bampton;Robert V [1,3]Bryant;Jane M [1,3,5]Andrews

机构地区：[1]Department of Gastroenterology, Royal Adelaide Hospital, North Terrace, Adelaide, SA 5000, Australia;[2]Department of Gastroenterology, Flinders Medical Centre, Flinders Drive, Bedford Park, SA 5042, Australia;[3]School of Medicine, University of Adelaide, Adelaide, SA 5000, Australia;[4]Department of Gastroenterology Women's and Children's Hospital Adelaide, SA 5006, Australia;[5]School of Medicine, Flinders University, Adelaide, SA 5001, Australia

出　　处：《World Journal of Gastroenterology》索引2016年第22卷第8期,共10页

基　　金：Supported by Alice Bennett received financial support during her research year from Abb Vie 摘　　要：AIM: To describe the disease and psychosocialoutcomes of an inflammatory bowel disease(IBD) transition cohort and their perspectives.METHODS: Patients with IBD, aged > 18 years, who had moved from paediatric to adult care within 10 years were identified through IBD databases at three tertiary hospitals. Participants were surveyed regarding demographic and disease specific data and their perspectives on the transition process. Survey response data were compared to contemporaneously recorded information in paediatric service case notes. Data were compared to a similar age cohort who had never received paediatric IBD care and therefore who had not undergone a transition process. RESULTS: There were 81 returned surveys from 46 transition and 35 non-transition patients. No statistically significant differences were found in disease burden, disease outcomes or adult roles and responsibilities between cohorts. Despite a high prevalence of mood disturbance(35%), there was a very low usage(5%) of psychological services in both cohorts. In the transition cohort, knowledge of their transition plan was reported by only 25/46 patients and the majority(54%) felt they were not strongly prepared. A high rate(78%) of discussion about work/study plans was recorded prior to transition, but a near complete absence of discussion regarding sex(8%), and other adult issues was recorded. Both cohorts agreed that their preferred method of future transition practices(of the options offered) was a shared clinic appointment with all key stakeholders. CONCLUSION: Transition did not appear to adversely affect disease or psychosocial outcomes. Current transition care processes could be optimised, with better psychosocial preparation and agreed transition plans. 关键词：TRANSITION care Crohn’s DISEASE ULCERATIVE COLITIS Chronic illness Inflammatory BOWEL DISEASE Patien

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Outcomes and patients' perspectives of transition from paediatric to adult care in inflammatory bowel disease

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